Famílias e Cuidados Informais › 45463

A unidade curricular de “Famílias e Cuidados Informais” tem como objectivo geral promover o conhecimento do actual estado da arte da investigação gerontológica sobre os cuidados familiares/informais no fim da vida, assim como a análise crítica dos actuais desafios e limitações conceptuais e metodológicas que caracterizam este campo de investigação.

 Tem como objectivos específicos:

• conhecer os principais modelos conceptuais que têm enquadrado a investigação gerontológica no domínio dos cuidados informais;
• conhecer os diferentes modelos e tipologias de intervenção para cuidadores familiares/informais;
• analisar as principais metodologias de investigação no contexto dos cuidados informais;
• discutir criticamente futuras linhas de pesquisa.

No final da UC, o estudante deve ser capaz de:

• conhecer o actual estado da arte da investigação gerontológica no âmbito dos cuidados familiares/informais no fim da vida;
• identificar as principais abordagens conceptuais que enquadram a investigação nos cuidados informais e analisa como se reflectem nos modelos e eficácia das intervenções;
• analisar criticamente as actuais limitações conceptuais e metodológicas da investigação gerontológica em cuidados informais;
• identificar novas linhas de pesquisa.

1. A experiência de cuidar como um evento normativo: considerações teóricas e metodológicas

1.1.  Cuidar e cuidador: delimitação conceptual

1.2. Perfil demográfico dos cuidadores informais

1.3. Tarefas e papéis

1.4. Consequências negativas na saúde física e psicológica and factores de risco

1.5. Consequências negativas noutros domínios de vida

1.6. Consquências positivas

2. Cuidar como processo: os modelos teóricos dominantes

2.1. Os modelos transaccionais de stress e coping

2.3. Instrumentos de medida em investigação gerontológica nos cuidados informais

2.3. Perspectiva temporal da prestação de cuidados

3. A experiência de cuidar e o apoio formal

3.1. Tipologia de intervenções

3.2. (in)Eficácia das intervenções

4. Perspectivas futuras de pesquisa

As metodologias são activas e interactivas, centradas na problematização, com ênfase na reflexão e análise crítica dos temas do programa. Inclui a análise crítica e discussão activa de textos científicos e o contacto e manuseamento de instrumentos teórico-práticos que promovem a compreensão dos temas.

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Andrén, S. & Elmstal, S. (2008). Psychosocial intervention for family caregivers of people with dementia reduces caregiver’s burden: development and effect after 6 and 12 months. Scandinavian Journal of Caring, 22, 98-109.

Aneshensel, C., Pearlin, L., Mullan, J., Zarit, S. e Whitlatch, C. (1995). Profiles in Caregiving. The Unexpected Career. San Diego, CA: Academic Press.

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Family caregiver Alliance (2002). Selected Caregiver Assessment Measures: A resource inventroy for praticitioners. San Francisco: National Center on Caregiving

Figueiredo, D. (2007). Cuidados Familiares ao Idoso Dependente. Lisboa: Climepsi Editores.

Figueiredo, D. (2009). Reinventing family caregiving: A challenge to theory and practice. In L. Sousa (Ed.) Families in Later Life: Emerging Themes and Challenges (pp.117-134). New York: Nova Science Publishers.

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Hanson, E.; Nolan, J., Magnusson, L., Sennemark, E., Johansson, L. & Nolan, M. (2006). COAT : The Carers Outcome Agreement Tool. Getting Research into Practice (GRiP) Report No 1, University of Sheffield.

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Pearlin, L., Mullan, J. , Semple, s. e Skaff, M. (1990). Caregiving an the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583-594.

Schulz, R. & Patterson, T. (2004). Caregiving in geriatric psychiatry. American Journal of Geriatric Psychiatry, 12 (3): 234-237)

Schulz, R. e Martire, L. (2004). Family caregiving of persons with dementia. Prevalence, health effects, and support strategies. American Journal of Geriatric Psychiatry, 12 (3): 240-249.

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Schulz, R., O’Brien, A., Czaja, S., Ory, M., Norris, R., Martire, L., Belle, S., Burgio, L., Gitlin, L., Coon, D., Burns, R., Gallagher-Thompson, D. & Stevens, A. (2002). Dementia caregiver intervention research: In search of clinical significance. The Gerontologist, 52(5), 589-602.

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